Pelka, Fred
What We Have Done: An Oral History of the Disability Rights Movement
Massachusetts (Amherst)
2012
OUR SYNOPSIS: Fred Pelka amplifies “the political struggle for disability rights in the United States, focusing on the decades immediately preceding the passage of the Americans with Disabilities Act of 1990.” By bringing together oral histories from numerous sources, he vitally foregrounds “first person accounts—the voices—of people with disabilities.” (ix) He argues, “It was the successes of the African American civil rights movement, more than any other single factor, that sparked the resurgence of disability rights activism in the late 1960s and early 1970s.” (23) Disability rights advocates leveraged civil rights gains and strategies, applying discrimination claims to their own cause. Throughout the book, Pelka provides context and analysis for each individual case of a person living with disabilities, then directly includes substantial portions of their oral histories to build his thematic chapters. He also crucially shows that from the late nineteenth century well into the twentieth, a large portion of people living with disabilities were institutionalized. Indeed, “having a disability often meant virtual lifelong imprisonment.” (48) In all cases, he emphasizes the importance of trying to understand discrimination against people living with disabilities as a personalized lived experience, unique to each person.
BIG QUESTIONS:
How have the childhood experiences of people living with disabilities varied historically?
What role did disability rights advocates play in the societal shift away from institutionalization for many people living with disabilities?
FEATURE QUOTES:
Diane Coleman: “Now, this was in the fifties and early sixties. Disability was bad—that’s how I was raised. That part of you was bad. What’s good about you is these other things, but what you need to do is [to] accomplish in spite of your disability, which is a bad thing. Now, I’m not saying that was emphasized—it was just understood.” (42)
PRIMARY SOURCES:
Nancy Ward, “Interview with Nancy Ward,” by Joe Caldwell, February 13-14, 2008, Disability Rights & Independent Living Oral Histories, The Bancroft Library Oral History Center (Berkeley, CA), https://digicoll.lib.berkeley.edu/record/219260.
BALTIMORE CONNECTIONS:
N/A